Wednesday, April 13, 2016

Fever #5

April 14th Update:

Isaac still had a slight fever this morning but they still did chemo. We got home from his appointment right before noon and I took his temperature and it was higher. So i called the hospital and unfortunately they had us come back.  ðŸ˜•  so we are now at the hospital for the 3rd time in 24 hours....

We had to re-access his port which he wasn't thrilled about.  Then we ran into issues in getting blood return. An hour later we finally got it to work and they started him on more antibiotics and now we are just waiting for blood results.  If counts are over 500 they'll let us go home again.  If they are under 500, they'll admit him overnight.  Hoping for some good news... 😊  now he is resting comfortably in mom's arms. 

Update:
Luckily Isaacs counts were high enough so we got to go home after a few hours. 😊 still has a fever but at least we can enjoy the comfort of home. 




April 13th Update:

Unfortunately Isaac came down with a low grade fever this afternoon.  So we are at the hospital right now waiting on blood work.  Each hospital has different protocols when it comes to fever for kids like Isaac.  Here at Blanks they will let Isaac go home if his blood counts are high enough (even despite the fever).  So we are just waiting for results while getting some antibiotics just in case.

We are hoping it's just a virus and that they'll let us go home today. Could be one perk of moving to Des Moines and transferring hospitals 😉.

We'll keep everyone posted.



7pm update:

Isaac was sent home from the hospital a few hours ago. His blood counts came back above the minimum requirement. So as long as he doesn't become neutrapenic then he can rest and get better here at home rather than the hospital. 😊  this is a different in procedure.  At the U of I any fever meant automatic 3 day admission. But here that is not the case.  They did culture his blood and they will monitor it for the next 3 days to make sure no bacteria grows. As long as it stays clear then Isaac should be good to go. He does still have a fever and deep cough but it's most likely a virus and should clear up on its own.  So here's to hoping he'll be better very soon!! 

Thanks for your thoughts and prayers!

Thursday, April 7, 2016

Chemo - Week 19

April 7th Update:

Today marks the 1 year anniversary since Isaac was diagnosed with a brain tumor. It's been quite the rollercoaster of a year. 1 year ago today we didn't know if we would have our son with us a few more weeks, but we are so blessed that God spared our son and we still have him in our lives today. God has done so much in our lives and we are so thankful for all that he provided. There were a lot of ups and downs but God was the one constant. 😊  He never ceases to amaze me.  Your support also has been a tremendous help! We've had so many go on this crazy journey with us and we will forever be grateful!  Thank you!!

Isaac got his 19th chemo treatment today. We have 33 more weeks to go pending things continue to progress well and as planned. We know that there are always hiccups in the road (hey we had to start over at week #1 after an allergic reaction 7 months into treatment but that's ok). We still have a fighting chance and we'll take whatever life throws at us. 😀


Thursday, March 31, 2016

Chemo - Week 18

March 31 Update:

Isaac's blood counts were really good this week!! So he had his 3rd treatment at Blanks. He already loves everyone there, and so does this mom. The staff here are so caring and kind. Isaac knows a few of them by name already. 😊  this appointment went great and there were no tears or fuss.



Today, Isaac was given this cool superhero cape.  This is so fitting because he loves superheros and he is such a little fighter. 


Friday, March 25, 2016

Chemo - week 17

March 24th Update:

Isaac did so great at his 17th chemo. Even though he just met everyone at Blanks last week he seemed to remember and was very friendly to them. 

He continues to go get his blood checked twice a week and thus far seems to be adjusting to DesMoines well.


Saturday, March 19, 2016

Chemo - Week 16 (Blank's Children's)

March 17th Update:

Isaac had his first chemo visit at Blank Children's Hospital in Des Moines this Thursday. It went well overall but there are some differences that we'll have to get use to (not really bad just different than what we are use to). 

Isaac was a champ and did quite well considering everyone was completely new to him.


Thursday, March 10, 2016

Chemo - Week 15

March 10th Update:

Today Isaac had his 15th chemo treatment. This was the last chemo at the university of Iowa. Next week we'll start our weekly treatments at Blanks Children's Hospital in Des Moines. Although we are excited to get to DM, it was bittersweet to leave the awesome staff at Iowa.  Here's Isaac with his 2 favorite nurses Emma and Kim (they've have been so great with Isaac!)




Sunday, March 6, 2016

Chemo - Week 14

March 3rd Update:

I'm a little late in posting about Isaac's last week's treatment but it has been one hectic week!!

Anyways IZ received his 14th chemo treatment on Thursday. His blood counts have been pretty good lately which is a huge blessing. You see we are in the midst of moving to Des Moines, so we have a lot on our plate. It's nice to not have to worry about low blood counts with everything else! 😉  Isaac will probably only have 1 more treatment at the U of I before we transfer him to Blanks. We sure will miss the awesome nurses, in particular Emma and Kim, who Isaac has grown close with.  Really hoping they'll be just as great in Des Moines.