Thursday, November 24, 2016

LAST CHEMO!!!

November 23rd Update:


We are overjoyed to share with you all that this brave little boy finished his last treatment of Chemotherapy today!!!
The road was heartbreaking, hope-filled, frustrating, time-consuming and now joyous! We give thanks to God that our son is with us and now has an amazing story to share. This lil guy has had to deal with Chemotherapy and a wide array of other medical events. Here are some numbers to show you how much Mr. Isaac has endured.


596 days since Isaac was diagnosed with a brain tumor
116 blood tests
77 port accesses
68 chemo treatments
13 overnight stays in the hospital
9 shots given at home by Mom and Dad
8 hour brain surgery
7 MRI's (with many more to come)
7 fevers (that required him going to the hospital)
2 ER visits
1 allergic reaction to his chemo
1 overnight stay in the ICU

We couldn’t be more thankful on the eve of Thanksgiving. Hold onto those you love and remember family is a gift from God.

Joshua 1:9 “Have I not commanded you? Be strong and courageous. Do not be afraid, do not be discouraged for the Lord your God will be with you wherever you go.” That is Isaac’s verse he was dedicated to when he was just a month old. I’d say this verse is pretty darn perfect for him.


LETS SPREAD THE LOVE, JOY AND SEASON OF THANKFULNESS!




Thursday, November 17, 2016

Chemo - Week 51

November 17th Update:

Isaac had his second to last chemo treatment today!!  It was a longer appointment for us as he also had this monthly antibiotic that runs over an hour but overall Isaac enjoyed his time in the hospital.  His favorite cartoons happen to be on tv during the chemo/sit and wait portion.  And prior he was able to do some crafts and play games while he waited for his medicine. 

Next Wednesday is his last chemo.  We are all counting down the days.  Even Isaac knows.  :-) 


Thursday, November 10, 2016

Chemo - Week 50

November 10th Update:

We made it to week 50!! Wow,  I can't begin to express how happy that makes me.  It's been quite the journey and now we ate looking at only 2 more weeks! How amazing is that?!?!

Isaac's appointment today went well.  Although he had to get his flu shot and let's just say he wasn't a big fan of that but what kid likes shots.  Besides that he did great!

His last chemo treatment will be on Wednesday,  the 23rd (since Thursday is Thanksgiving)


Thursday, November 3, 2016

Chemo - Week 49

November 3rd Update

Isaac's blood counts were really good yesterday so this morning we woke up bright and early and headed to the hospital for Isaac's 49th treatment.  We might have all been a tad bit tired from staying up so late watching the amazing Cubs won the world series but it was worth it. 


Thursday, October 27, 2016

Chemo - Week 48

October 27th Update:

Isaac wore his Captain America Halloween costume to his chemo treatment today.  The nurses,  and staff loved it, as did Isaac.  :-)  After his treatment (when we were getting ready to leave) he was showing off his costume to a group of nurses and then all of a sudden salutes them while saying "Captain America reporting for duty", then turns to leave... and that was that :-) haha

Only 4 more left! Getting real now!!!


Chemo - Will 47

October 20th Update:

Isaac is down to 5 chemo treatments left.  Today's chemo went well.  Isaac was greeted by a group of college kids with the organization "Love Your Melon". They all dressed up as superheros and wow capes.  They gave Isaac a green hat to wear in the winter and a superhero coloring page.  Isaac of course loved their theme. 


Thursday, October 13, 2016

Chemo - Week 46

October 13th Update:

Isaac's counts Wednesday plummeted from last week.  He's unfortunately  now neutropenic so he can't get chemo today.  Also had to give him his "booster" shot last night before bed time cause counts were so low.   Gosh it never gets easier to hold down your child and stick him with a needle.  Err! But we got through it as we always do. 

In times past we've moved Isaac's mattress into our room for a "slumber party" as he tends to wake up more with bone passion when he gets this shot.  Well last night we didn't mention it to Issac but we planned to try keeping him in his room to see how he did.  Well a few minutes after the shot was over he says "Now, let's go get my bed and have a slumber party" :-) little stinker totally remembered the times pasts.  So what did we do.... we had a slumber party.  Haha.

He unfortunately didn't do as well as he's done at night the past couple times. He woke up A Lot! So about 3am he ended up in the middle of our bed and then after that we all got some decent sleep. 

6 more treatments left!